Category: Bridging the Research Data Divide

Marie C. McCormick Papers Open to Research

By , June 29, 2017
Marie C. McCormick.

Marie C. McCormick.

The Center for the History of Medicine is pleased to announce that the papers of Marie C. McCormick, 1956-2016 (inclusive), 1968-2009 (bulk), are now open to research. McCormick is the Sumner and Esther Feldberg Professor of Maternal and Child Health in the Department of Social and Behavioral Sciences, Harvard T.H. Chan School of Public Health; Professor of Pediatrics at Harvard Medical School; and Senior Associate for Academic Affairs in the Department of Neonatology, Beth Israel Deaconess Medical Center. Her research has primarily focused on epidemiology and health services, particularly in relation to infant mortality and the outcomes of high-risk and very low birth weight neonates.

She served on all four phases of the Infant Health and Development Program (IHDP), the largest longitudinal multisite randomized trials of early childhood educational intervention for low birth weight and high-risk infants, and was the Principal Investigator of Phase IV of the program. She was also a senior investigator on both the federal Healthy Start Program and the Robert Wood Johnson Foundation National Perinatal Regionalization Program. She served as Chair of the Institute of Medicine’s (now National Academy of Medicine) Committee on the Health Effects of Marijuana, and its Immunization Safety Review Committee, for which she testified twice before the U.S. House of Representatives on the lack of evidence linking vaccinations with autism (2001 and 2004). In 1996, she also testified before the U.S. Senate on the National Healthy Start Initiative. She has published 12 books and monographs, as well as over 280 scientific papers, reviews, editorials, reports, and abstracts.

The papers include research, teaching, administrative, and publishing records, generated by McCormick over the course of her career, such as:

  • Infant Health and Development Program (Phases I-IV) administrative records;
  • Evaluation of Regionalized Networks for High Risk Pregnancy Care study administrative records;
  • Long Term Outcomes of Very Low Birthweight Infants study administrative records;
  • Occasional research data from the previous three studies;
  • Teaching records for courses related to maternal and child health, taught by McCormick at the Harvard T.H. Chan School of Public Health;
  • Grant records for graduate training grants related to maternal and child health; and
  • Writings and publications related to maternal and child health, epidemiology, regionalization of care, and other topics in public health.

The collection was processed as part of the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library and Information Resources. For more information on the project, please contact the project’s principal investigator, Emily R. Novak Gustainis, Deputy Director of the Center for the History of Medicine.

For more information on McCormick’s collection, please view the online finding aid: http://nrs.harvard.edu/urn-3:HMS.Count:med00244.

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Harvard Prevention Research Center and Steven L. Gortmaker Collections Open to Research

By , June 29, 2017
Fitness Folder, from the Harvard Prevention Research Center's Planet Health Curriculum.

Fitness Folder, from the Harvard Prevention Research Center’s Planet Health Curriculum. P-DT08.01, Series 00598. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

The Center for the History of Medicine is pleased to announce the opening of two collections: the records of the Harvard Prevention Research Center (HPRC) and the papers of the HPRC’s Director, Steven L. Gortmaker.

The Harvard Prevention Research Center on Nutrition and Physical Activity was founded in 1998 at the Harvard T.H. Chan School of Public Health, to work with community and governmental organizations in the research, development, and implementation of school- and community-based youth intervention programs to encourage better health habits. The HPRC has conducted a number of intervention research projects, including: the randomized control trial of the Planet Health curriculum, which is used in middle schools to teach healthy decision making about nutrition, exercise, and leisure activities; and the Play Across Boston project, which surveyed and evaluated the availability of afterschool fitness programs for Boston-area youth, and studied how access and individual family characteristics influence youth physical activity.

The HPRC records include administrative records and research data for both Planet Health and Play Across Boston. Planet Health records include student fitness questionnaires, television viewing worksheets and graphs, financial records, Wellness Workshops administrative records, and student participation records. Play Across Boston records include: student surveys (concerning health and exercise habits, demographics, access to fitness programs, and other topics); and fitness program provider surveys (concerning program details, cost and accessibility, and participant numbers and demographics).

Steven L. Gortmaker.

Steven L. Gortmaker, M-AD06. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

In addition to directing the HPRC, Steven L. Gortmaker is Professor of the Practice of Health Sociology in the Department of Social and Behavioral Sciences, Harvard T.H. Chan School of Public Health. His research focuses primarily on the health and mortality risks affecting children and adolescents (particularly low-income and minority), and interventions for mitigating those risks. He served as Principal Investigator on a number of HPRC initiatives, including Planet Health, Play Across Boston, the Out of School Nutrition and Physical Activity Initiative (OSNAP), and is also Co-Director of the Childhood Obesity Intervention Cost-Effectiveness Study (CHOICES). In 1997, he was awarded the Robert Wood Johnson Foundation Investigator Award in Health Policy Research.

Gortmaker’s papers comprise his research and teaching records generated during his career. The collection includes research data and administrative records from a number of projects, including: an obesity research project using data from the National Health and Nutrition Examination Survey; the Robert Wood Johnson Foundation’s Rural Infant Care Program; and organ donation research for the Partnership for Organ Donation. The papers also include Harvard T.H. Chan School of Public Health teaching records for courses related to HIV, social behavior, and statistics.

The collections were processed as part of the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library and Information Resources. For more information on the project, please contact the project’s principal investigator, Emily R. Novak Gustainis, Deputy Director of the Center for the History of Medicine.

More information on the collections may be found in their online finding aids: http://nrs.harvard.edu/urn-3:HMS.Count:med00242 (Harvard Prevention Research Center Records); and http://nrs.harvard.edu/urn-3:HMS.Count:med00243  (Steven L. Gortmaker papers).

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Records of the Harvard School of Public Health Longitudinal Studies of Child Health and Development Now Open to Research

By , May 12, 2017
Faculty members of the Harvard School of Public Health Department of Maternal and Child Health, reading a Growth Study Case History. Seated: Bertha S. Burke, Harold C. Stuart, and Elizabeth P. Rice. Standing: Samuel W. Dooley and Samuel B. Kirkwood, circa 1949.

Faculty members of the Harvard School of Public Health Department of Maternal and Child Health, reading a Growth Study Case History. Seated: Bertha S. Burke, Harold C. Stuart, and Elizabeth P. Rice. Standing: Samuel W. Dooley and Samuel B. Kirkwood, circa 1949, H MS c450. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

The Center for the History of Medicine is pleased to announce that the records of the Harvard School of Public Health Longitudinal Studies of Child Health and Development, 1918-2015 (inclusive), 1930-1989 (bulk), are now open to research. The longitudinal studies, otherwise known as the Harvard Growth Study, were founded in 1930 by Harold Coe Stuart (1891-1976) in the school’s Department of Maternal and Child Health. It was one of several United States growth studies that were initiated in response to a recognized lack of knowledge about child health and development. The original study enrolled 309 prenatal subjects between 1930 and 1939, 134 of whom were followed through to maturity (18 years). Researchers tracked subjects’ health, physical development, diet, and social and psychological functioning. The data from this and other growth studies were used to create pediatric growth curves and percentile charts that became the standard used by pediatricians across the country.

Infant boys anthropometric growth chart, created with data from the Harvard School of Public Health Longitudinal Studies of Child Health and Development.

Infant boys anthropometric growth chart, created with data from the Harvard School of Public Health Longitudinal Studies of Child Health and Development. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

Recognizing the reuse potential of the rich data collected during the original study, investigators periodically called subjects back for more targeted follow-up studies over the following decades.  A 30-year follow-up study on adult health related to child health was conducted between 1960 and 1969; a 40-year follow-up on blood pressure and cardiac health was held between 1970 and 1979; and two 50-year follow-up studies on gynecology and memory of diet in the distant past took place between 1980 and 1989.

The records comprise research data from the original and all four follow-up studies. There is a variety of data types and formats, including: physical examinations and medical records; anthropometric measurements and growth curves; progressive somatotype photographs; somatotype family trees; nutrition and diet surveys; social work interviews and reports; and various medical test results. The data is accompanied by methodologies, protocols, codebooks, reports, grant files, subject participation records, personnel records, and related administrative records.  The collection also includes manuscript drafts and publications composed by Growth Study staff members, and collected publications, brochures, and pamphlets related to maternal and child health.

Family Physical Characteristics Key, created during the Harvard School of Public Health Longitudinal Studies of Child Health and Development.

Family Physical Characteristics Key, created during the Harvard School of Public Health Longitudinal Studies of Child Health and Development. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

This is the first of four collections to be processed under the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library Resources.  For more information on the project, please contact the project’s principal investigator, Emily R. Novak Gustainis, Deputy Director of the Center for the History of Medicine.

For more information on the Growth Study and the collection, please view the online finding aid:

http://oasis.lib.harvard.edu/oasis/primo?id=med00211&q=undefined

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Processing of the Harvard Prevention Research Center Records

By , March 29, 2017
Fitness Folder, from the Harvard Prevention Research Center's Planet Health Curriculum.

Fitness Folder, from the Harvard Prevention Research Center’s Planet Health Curriculum. P-DT08.01, Series 00598. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

The Center is pleased to announce that the records of the Harvard Prevention Research Center (HPRC), 1992-2003, are currently being processed as part of the Bridging the Research Data Divide project. The Harvard Prevention Research Center at the Harvard School of Public Health (as of 2014, the Harvard T.H. Chan School of Public Health), was founded in 1998. The Center works with local, community, and government organizations to research, develop, implement, and refine school- and community-based youth intervention programs to encourage better health habits among youth. Programs particularly focus on improving nutrition and exercise habits, in order to lower the risk of obesity and chronic disease in children and youth. As of 2016, the Center is nested under the Department of Social and Behavioral Sciences. Steven L. Gortmaker (born 1949) serves as Principal Investigator and Director, and Angie Cradock is the Deputy Director.

The collection is a product of two research projects and educational interventions developed and implemented by the Harvard Prevention Research Center under the direction of Steven Gortmaker: Planet Health (1995-), funded by the National Institute of Child Health and Human Development, the Centers for Disease Control and Prevention, and a university gift; and the Play Across Boston project (1999-2001), funded by the Centers for Disease Control and Prevention. Planet Health is a middle-school-based wellness curriculum developed for use by teachers and physical education instructors to teach healthy decision-making regarding nutrition, exercise, and leisure activities, while also supporting learning in traditional subject areas. Planet Health records, dated 1992-1997, were developed during the randomized control trial conducted to produce the curriculum, and include: student activity and diet worksheets; teacher and student focus group transcripts and recordings; wellness workshop records; student-made activity graphs; analyzed data; and research administrative records. Play Across Boston was a collaborative initiative with Northeastern University’s Center for the Study of Sport in Society, to survey and evaluate the availability of after-school fitness activity programs for Boston-area youth, and to determine how both access to these resources and individual family characteristics influence youth physical activity. The project surveyed youth participation in 237 programs in the greater Boston area. Play Across Boston records are dated 2000-2003, and consist of: student surveys regarding participation in organized physical activity outside of school hours; and fitness program provider surveys concerning details of program offerings and student participation during the school year and summer vacation months.

The collection is expected to be open to research in 2017. Processing of the collection is part of the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library and Information Resources (CLIR). For more information on the project, please contact the project’s Principal Investigator, Emily R. Novak Gustainis, Deputy Director of the Center for the History of Medicine.

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Processing of the Steven L. Gortmaker Papers

By , March 3, 2017
Steven L. Gortmaker.

Steven L. Gortmaker, M-AD06. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

Steven Lawrence Gortmaker (born 1949), is Professor of the Practice of Health Sociology in the Department of Social and Behavioral Sciences, Harvard T.H. Chan School of Public Health, Boston, Massachusetts, and Director and Principal Investigator of the school’s Harvard Prevention Research Center on Nutrition and Physical Activity. His research has primarily focused on the health and mortality risks affecting children and adolescents, especially among low-income and minority groups, and interventions aimed at mitigating those risks. Toward these ends, he served as Principal Investigator for numerous research initiatives at the Harvard Prevention Research Center, including: Planet Health (1995-2007); the Out of School Nutrition and Physical Activity Initiative (OSNAP) (2009-2015); and Play Across Boston (1999-2009). He was also Co-Director of the Childhood Obesity Intervention Cost-Effectiveness Study (CHOICES), and Senior Advisor to the Healthy Eating Research Program of the Robert Wood Johnson Foundation. He was the 1997 recipient of the 1997 Robert Wood Johnson Foundation Investigator Award in Health Policy Research. The Center is pleased to announce that Gortmaker’s papers, dated 1959-1997, are currently being processed.

The records are the product of Gortmaker’s personal and professional activities during his service at Harvard T.H. Chan School of Public Health (previously Harvard School of Public Health), and include: research and administrative records for the Rural Infant Care Program and Child Health Studies (1975-1996), the National Health and Nutrition Examination Survey (1963-1985), and the Partnership for Organ Donation (1992-1997); administrative records for the Harvard School of Public Health departments of Behavioral Sciences and Health and Social Behavior; teaching records for courses in the Department of Health and Social Behavior related to statistics, sexuality, and HIV/AIDS; and collected publications. The records are expected to be open to research in 2017.

The records of the Harvard Prevention Research Center are also currently being processed at the Center.

Processing of the collection is part of the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library and Information Resources (CLIR). For more information on the project, please contact the project’s Principal Investigator, Emily R. Novak Gustainis, Deputy Director of the Center for the History of Medicine.

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Processing of the Marie C. McCormick Papers

By , December 19, 2016
Marie C. McCormick.

Marie C. McCormick, 2000, M-AD06. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

The Center is pleased to report that the Marie C. McCormick papers, 1970-2010, the products of McCormick’s professional, research, and publishing activities, are currently being processed as a part of the Bridging the Research Data Divide project.  McCormick is the Sumner and Esther Feldberg Professor of Maternal and Child Health in the Department of Social and Behavioral Sciences at Harvard T.H. Chan School of Public Health, Professor of Pediatrics at Harvard Medical School, and Senior Associate for Academic Affairs in the Department of Neonatology at Beth Israel Deaconess Medical Center.  Her research has focused primarily on epidemiology and health services, particularly in relation to infant mortality and the outcomes of very low birth weight and otherwise high-risk neonates.  Toward these ends, she has served as a senior investigator on both the federal Healthy Start Program and the Robert Wood Johnson Foundation National Perinatal Regionalization Program.  She was also the Principal Investigator of Phase IV of the Infant Health and Development Program (IHDP), the largest longitudinal multi-site randomized trials of early childhood educational intervention for low birth weight infants.  Between 2000 and 2004, she served as Chair of the Institute of Medicine’s Immunization Safety Review Committee, for which she testified twice before the United States House of Representatives on the lack of evidence linking vaccines with autism. In 1996, she also testified before the United States Senate on the National Healthy Start Initiative.  She is the recipient of numerous awards and honors, including: the 2004 David Rall Medal of the National Academy of Medicine, for Exceptional Service; the 2006 Douglas K. Richardson Award of the American Pediatric Society, for Perinatal and Pediatric Healthcare Research; and the 2008 Henry Ingersoll Bowditch Award of the Massachusetts Medical Society, for Excellence in Public Health.

The papers, created through McCormick’s professional, research, and publishing activities, include research administrative records of Phases I-IV of the Infant Health and Development Program, research administrative records and data of several high risk pregnancy and very low birth weight studies, Harvard T.H. Chan School of Public Health teaching and administrative records, writings and publications, and collected publications. They are expected to be open to research in 2017.

Processing of the collection is part of the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library and Information Resources (CLIR). For more information on the project, please contact the project’s Principal Investigator, Emily R. Novak Gustainis, Deputy Director of the Center for the History of Medicine.

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Staff Finds: Teaching Charts from the HSPH Growth Study

By , May 25, 2016
Child Development Body Proportions Diagram, undated.

Child Development Body Proportions Diagram, undated. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

While processing the records of the Harvard T.H. Chan School of Public Health Longitudinal Studies of Child Health and Development, processing staff in the Center for the History of Medicine recently found a collection of teaching charts, many of which were likely developed with data from the HSPH Growth Study and other contemporary longitudinal growth studies.  There is no indication of whether the visuals were used for classes in the school’s Department of Maternal and Child Health (where the study was located), or to accompany lectures at professional conferences and symposia.  Charts are often longitudinal by age and cover a variety of topics, including: growth and development; puberty and development of the reproductive system; blood counts; blood pressure; hormone levels; nutritional intake; and skin and tissue breadth.  Growth and development charts make up the majority of the images, covering: body proportions from fetus through 25 years; height and weight gain patterns; height increments for early, moderate, and late age of maximum growth; median and average weight and height gains by age; skeletal age; and height and weight percentile charts. All are undated, but the majority were likely created after 1957, by which point all subjects would have reached 18 years of age.  A selection of these visuals may be found below.

The Harvard School of Public Health Longitudinal Studies of Child Health and Development were founded in 1930 by the Department of Maternal and Child Health, under the direction of Harold Coe Stuart (1891-1976).  You can find out more about the collection here.  The records are expected to be open to research in summer 2016.  Processing of the collection is part of the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library and Information Resources (CLIR). For more information on the project, please contact the project’s principal investigator, Emily R. Novak Gustainis, Deputy Director of the Center for the History of Medicine.

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Staff Finds: Growth and Development Charts

By , March 31, 2016
Infant girls anthropometric growth chart, created with data from the Harvard School of Public Health Longitudinal Studies of Child Health and Development.

Infant girls anthropometric growth chart, created with data from the Harvard School of Public Health Longitudinal Studies of Child Health and Development. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

Processing staff in the Center for the History of Medicine recently found a variety of child growth and development charts while processing the records of the Harvard School of Public Health Longitudinal Studies of Child Health and Development (also known as the Growth Study).  Many were created using data from the Harvard Growth Study, but the collection also contains charts that were likely developed by other organizations, collected as reference in the course of research.

The Growth Study was founded in 1930 by Harold Coe Stuart in the Harvard School of Public Health Department of Maternal and Child Health, and included an initial study (birth through maturity) and multiple follow-up studies through the late 1980s.  Over 300 subjects were enrolled between 1930 and 1939, and of those 134 were followed through to maturity (18 years).  The study monitored a number of aspects of health and development; however, a major focus of the original study was the tracking of physical growth and development through anthropometric measurements, x-rays, and progressive somatotype photographs.  This data was then used to make standardized growth charts for distribution to physicians and researchers.  Subjects were primarily of North European ancestry and from the Boston area; while this allowed for a controlled study, it may have also limited the charts’ applicability to a wider population.

Stuart’s original male and female curves were distributed by Mead Johnson International, and charted weight, length, and head circumference for infants, and height and weight for children through age 12.  These charts were later translated into French for distribution in Canada, and potentially into other languages.  A letter by William M. Schmidt references a later percentile chart that was developed in the 1960s, covering birth through 18 years, although examples have not yet been found in the collection.  According to an article by de Onis and Yip, Stuart’s charts later became an international standard of reference when in 1966, the World Health Organization widely distributed a version with combined male and female data.

An earlier chart can be found in the collection that was developed in collaboration with the University of Iowa, in which Harvard data is displayed for years 0 through 5, and Iowa data is displayed for years 5 through 18.  The collection also contains: charts developed by the University of Iowa (covering years 4 through 18); Danish height and weight charts created through an unidentified study; and physical and social development charts (covering birth to 56 weeks), published by Ross Developmental Aids using data from an unidentified study.

Examples of the mentioned charts and related correspondence may be found below.

The records of the Harvard School of Public Health Longitudinal Studies of Child Health and Development are expected to be open to research in summer 2016.  Processing of the collection is part of the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library and Information Resources (CLIR).  For more information on the project, please contact the project’s principal investigator, Emily R. Novak Gustainis, Deputy Director of the Center for the History of Medicine.

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Staff Finds: Family Physical Characteristics Trees

By , January 22, 2016
Family Physical Characteristics Three-Generation Tree, created for a subject during the Harvard School of Public Health Longitudinal Studies of Child Health and Development. Subject name and number have been redacted.

Family Physical Characteristics Three-Generation Tree, created for a subject during the Harvard School of Public Health Longitudinal Studies of Child Health and Development. Subject name and number have been redacted. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

While processing the records of the Harvard School of Public Health Longitudinal Studies of Child Health and Development (also known as the Growth Study), Center processing staff recently found family trees depicting body shapes and sizes in subjects’ families, covering two to three generations.  These trees show individuals’ height, girth, and sex, while some also show whether men were broad-chested or broad-bellied.  The trees were drawn on graph paper in order to standardize the shapes and sizes of the symbols used to represent individuals.  A key to the symbols used may be found below.  It is unclear how this data was gathered (whether actual measurements were taken of the subjects’ parents, aunts, uncles, and grandparents, or whether the information was relayed to the investigator by the subject or his parents).

Anthropometric measurements (measurements of various dimensions of the body) were a major part of the original and follow-up studies.  Measurements were taken of the length and circumference of various body parts, tissue thicknesses, and subjects’ weights and heights, to study how subjects’ bodies developed and changed during childhood and throughout the course of their lives.  X-rays were also used to study osseous development, and progressive photographs were taken to study subjects’ posture and visual appearance.  These family trees appear to be one way in which this data was analyzed, in the context of how family histories relate to individual development.

Family Physical Characteristics Key, created during the Harvard School of Public Health Longitudinal Studies of Child Health and Development.

Family Physical Characteristics Key, created during the Harvard School of Public Health Longitudinal Studies of Child Health and Development. From the Harvard Medical Library in the Francis A. Countway Library of Medicine.

This data was also studied in relation to family illness histories.  Transparent overlays were made to layer illness data over some subjects’ trees, perhaps to visualize the impact of illness on inherited body type, or to trace the inheritance of various conditions in relation to body shape and size.

These trees are just one of many types of data and analysis that can be found in the Growth Study records.  The records are expected to be open to research in summer 2016.  Processing of the collection is part of the Bridging the Research Data Divide project, funded by a Hidden Collections grant administered by the Council on Library and Information Resources (CLIR).  For more information on the project, please contact the project’s principal investigator, Emily R. Novak Gustainis, Head, Collections Services.

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